Joint hypermobility syndrome
Hypermobility means your joints are more flexible than other people's (you may think of yourself as "double jointed"). When this causes pain it might be joint hypermobility syndrome.
See a GP if you:
- often get pain or stiffness in your joints or muscles
- keep getting sprains and strains
- keep dislocating your joints (joints "pop out")
- have poor balance/co-ordination
- have thin, stretchy skin
- have digestive problems like diarrhoea or constipation
These can be symptoms of joint hypermobility syndrome.
What happens at your GP appointment
Your GP will usually test the flexibility of your joints using the Beighton score.
They may also refer you for a blood test or X-ray to help rule out any other conditions like arthritis.
Testing hypermobility – Beighton score
4 points = hypermobility likely.
4 points and pain in 4 or more joints for at least 3 months = joint hypermobility syndrome likely.
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Doctors will also use more detailed Beighton criteria to help their diagnosis – read about the more detailed Beighton criteria.
Treating joint hypermobility syndrome
There's no cure for joint hypermobility syndrome.
The main treatment is improving muscle strength and fitness so your joints are protected.
Ask your GP to refer you to a physiotherapist or occupational therapist for specialist advice. You can also book them privately. They can help you:
- reduce pain and risk of dislocations
- improve muscle strength and fitness
- improve posture and balance
Joint care you can do yourself
To improve joint and muscle strength and reduce strain:
- do high-impact exercise
- grip things too tightly
- over-extend your joints just because you can
Children's joint care
Treating joint pain
Paracetamol and anti-inflammatory painkillers (like ibuprofen, which can come in tablets, gels and sprays) may help ease any pain. Speak to a pharmacist about the best treatment for you.
Your GP may be able to prescribe stronger painkillers.
If you're in severe pain, ask your GP to refer you to a pain clinic to help you learn how to cope better with pain.
To help ease joint pain and stiffness you can:
- have warm baths
- use hot water bottles
- use heat-rub cream
What causes joint hypermobility syndrome
Joint hypermobility syndrome usually runs in families and can't be prevented.
Usually the joints are loose and stretchy because the tissues that should make them stronger and support them are weak.
The weakness is because the collagen that strengthens the tissues is different to other people's.
Ehlers-Danlos syndrome (EDS)
Most experts agree that joint hypermobility syndrome and Ehlers-Danlos syndrome are the same and patients should get the same treatment.
This may change as more research is carried out.
If you can’t speak to your GP or don’t know what to do next.