Joint hypermobility syndrome

Hypermobility means your joints are more flexible than other people's (you may think of yourself as "double jointed"). When this causes pain it might be joint hypermobility syndrome.

See a GP if you:

  • often get pain or stiffness in your joints or muscles
  • keep getting sprains and strains
  • keep dislocating your joints (joints "pop out")
  • have poor balance/co-ordination
  • have thin, stretchy skin
  • have digestive problems like diarrhoea or constipation

These can be symptoms of joint hypermobility syndrome.

What happens at your GP appointment

Your GP will usually test the flexibility of your joints using the Beighton score.

They may also refer you for a blood test or X-ray to help rule out any other conditions like arthritis.

Testing hypermobility – Beighton score

4 points = hypermobility likely.

4 points and pain in 4 or more joints for at least 3 months = joint hypermobility syndrome likely.

Can you… Points
bend a knee backwards 1
bend an elbow backwards 1
bend a thumb backwards onto your forearm 1
bend a little finger back more than 90 degrees 1
put hands flat on floor with knees straight 1
See pictures of the these tests

Doctors will also use more detailed Beighton criteria to help their diagnosis – read about the more detailed Beighton criteria.

Treating joint hypermobility syndrome

There's no cure for joint hypermobility syndrome.

The main treatment is improving muscle strength and fitness so your joints are protected.

Ask your GP to refer you to a physiotherapist or occupational therapist for specialist advice. You can also book them privately. They can help you:

  • reduce pain and risk of dislocations
  • improve muscle strength and fitness
  • improve posture and balance

It may help to meet other people with joint hypermobility syndrome or join a support group like the Hypermobility Syndromes Association or Ehlers-Danlos Support UK.

Joint care you can do yourself

To improve joint and muscle strength and reduce strain:

Do

  • gentle, low-impact exercise like swimming or cycling – not exercising can make your symptoms worse
  • maintain a healthy weight
  • buy good firm shoes
  • if you have flat feet, use special insoles (support arches) in shoes

Don't

  • do high-impact exercise
  • over-exercise
  • grip things too tightly
  • over-extend your joints just because you can

Children's joint care

Download joint care techniques for children (PDF, 332kb)

Treating joint pain

Paracetamol and anti-inflammatory painkillers (like ibuprofen, which can come in tablets, gels and sprays) may help ease any pain. Speak to a pharmacist about the best treatment for you.

Your GP may be able to prescribe stronger painkillers.

If you're in severe pain, ask your GP to refer you to a pain clinic to help you learn how to cope better with pain.

To help ease joint pain and stiffness you can:

  • have warm baths
  • use hot water bottles
  • use heat-rub cream

What causes joint hypermobility syndrome

Joint hypermobility syndrome usually runs in families and can't be prevented.

Usually the joints are loose and stretchy because the tissues that should make them stronger and support them are weak.

The weakness is because the collagen that strengthens the tissues is different to other people's.

Ehlers-Danlos syndrome (EDS)

Most experts agree that joint hypermobility syndrome and Ehlers-Danlos syndrome are the same and patients should get the same treatment.

This may change as more research is carried out.

Call 111

If you can’t speak to your GP or don’t know what to do next.

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